Due to the recent
discovery of two cases of vCJD blood transfusion transmission in the
U.K. the American Red Cross, at the October 14 FDA TSEAC meeting,
announced an acceleration of their “Look Back” study implemented in
1995. In this study all blood and blood products donated to the American
Red Cross by a person who subsequently died of CJD will be traced.
This “Look Back” study
is a very important one for all of our families of CJD patients, past
and present. If your loved one was a blood donor or a blood recipient
and you wish to participate please contact one of the names listed
This study is being
given high priority by the ARC and the CDC. I know we all certainly hope
that sCJD is not a vector, however, we won’t know unless this research
The recipients of any
whole blood or blood product donated by a person who subsequently died
of CJD will NOT be notified unless medically appropriate notification
and counseling is deemed necessary by the health care provider.
Karen Fujii, 301 738-0774,
Edward Notari, 301 738=0646, email:
Shimian Zou, PhD, 301-738-0644, email:
This is our
opportunity to help science in an important way and to honor a loved one
struck with this devastating disease either past or present.