Stay in contact with people who've experienced
every aspect of CJD. We have lost family members, friends and coworkers.
Join us in finding a way of coping with the impact of this horrendous
disease. Learn more about it's impact on the human body, and the aftermath
of destruction that occurs.
Want to join our
email discussion group?
The traffic is at times
heavy. If you join and find that the correspondence is too much for
your present situation, we now have a digest option. There are no
charges for joining our support group and no limitations on how involved
you become in our causes. We only ask that families provide a
Member Profile at some point so that we may include every case in our
Please remember that the
privacy of every member is ALWAYS a priority!! We never forward
these profiles to the group and no private information is ever publicly
posted for any reason. Follow the links below to join our
group. Please remember that submitting a member profile does
not subscribe you to the mailing list. Due to the heavy
traffic we ask that you specifically request to be added to the list.
Once you receive
notification of subscription to the mailing list, please submit a
summary of your situation and how you are linked to the topic of CJD and
forward it to the group so that everyone can "meet" you. All
subscription to the mailing list must be approved so you will never get
"spammed" while on our list. We look forward to hearing
from each of you.
Thanks for contacting CJD
Voice from the founders, Dolly, Pat & Liz.
Submit a member profile
Send your email request to join the mailing list
Rules of Participation:
Flaming, intolerance, harassment, bickering, backbiting and negativity
against leadership and members are considered serious violations.
Violators of these rules may find their messages moderated, but also may
find themselves removed from participation.
Disagreements should be held in private and not aired in public.
The Founders and the webmaster of cjdvoice.org are not responsible for
the messages of posters within the discussion group but will do their
best to make sure the discussion group is a comfortable place to discuss
the loss of a loved one, friend or associate. To also share news and other
topics of interest.