Contact Us!


Member Articles & Stories

Below are collective writings from members. The articles are listed in no particular order with no preference.

I just received a poem that is helping cope with the loss of my husband... maybe it will help others too...


If tomorrow starts without me, and I'm not there to see
If the sun should rise and find your eyes all filled with tears for me; I wish so much you wouldn't cry the way you did today, while thinking of the many things we didn't get to say. I know how much you care for me, and how much I care for you and each time you think of me, I know, you'll miss me too.

But when tomorrow starts without me, please try to understand, that an angel came and called my name and took me by the hand, and said my place was ready now, in heaven far above, and that I'd have to leave behind all those I dearly love.

But, as I turned to walk away, a tear fell from my eye,
for all life, I'd always thought I didn't want to die.
I had so much to live for and so much yet to do
it seemed almost impossible that I was leaving you.
I thought of all the love we shared and all the fun we had If I could relive yesterday, I thought, just for awhile I'd say good-bye and hug you and maybe see you smile.

But then I fully realized that this could never be,
for emptiness and memories would take the place of me. And when I thought of worldly things that I'd miss come tomorrow, I thought of you, and when I did, my heart was filled with sorrow.

But when I walked through heaven's gates, I felt so much at home. When God looked down and smiled at me, from His great golden throne, He said, "This is eternity and all I've promised you. Today your life on earth is past but here it starts anew. I promise no tomorrow, but today will always last, and since each day's the same day, there's no longing for the past.

But you have been so faithful, so trusting, so true.
Though there were times you did some things you knew you shouldn't do. And you have been forgiven and now at last you're free So won't you come and take my hand and share my life with me?"

So if tomorrow starts without me, don't think we're far apart, for every time you think of me, please know I'm in your heart.
.... Beverly B

The Walk Through Hell

There are many of us on the Earth connected by a common bond, a well-disguised demon named "CJD" (Creutzfeldt-Jakob Disease), which we are constantly haunted by. Are you familiar with CJD?? Welcome to a living hell...CJD... take a brief walk with me while I tell you of the most horrifying disease known to mankind. The horror of CJD is two-fold... first no one knows they actually have CJD... endless neurological tests are performed when someone has trouble with balance/coordination, personality/behavioral changes, fearfulness, loss of memory, visual problems, insomnia. The irony is that test results show nothing. But... there is something seriously wrong, neurological problems/symptoms increase ... and it is the beginning of the end. Because when diagnosis of CJD is confirmed by either brain biopsy or cebrospinal fluid testing... there is nothing under God's heaven that can save anyone. The complete central nervous system is shutting down, slowly but surely, and a person is trapped inside their own body with no way out... and from then on, their life is in God's merciful hands. My beloved husband and I took the CJD walk through hell on a 24-hour basis from the time I quit work in August 1996 until the moment of his death at 10:45 PM on March 18, 1997. I took each step with him and watched my life also coming to an end... for he was my life. I knew I must survive to support and care for him so I finally put it all in God's hands... for Him to take control and finally take my husband home where he could walk, talk, smile, laugh, swallow, turn over and eat again. I can't help my husband anymore but have committed myself to honor him by offering support to and maintaining contact with others who are presently taking the walk through hell with a CJD victim... or have a loved one with puzzling neurological symptoms the doctors cannot identify, so indicative of CJD, or simply other "survivors" who, like myself, are trying to put their lives back together. Help us create a public awareness of CJD... stir the fires for increased research funding.. because there may be an epidemic unfolding before our eyes. As a part of my work with CJD, I hope to write a book on personal CJD experiences so that others can read how this demon "CJD" can literally destroy a wonderful person. I ask anyone else who has had experience with CJD to submit their story to me for inclusion. Thank you... Dolly Campbell


Friends, you and me...
you brought another friend
and then there were three
we started our group
our circle of friends
and like that circle
there is no beginning or end.

Passed on from a friend to a friend.... 
Pat Ewanitz

Home Page  Story Index

Contact Us

Copyright © 1997 - 2014, CJD Voice. All rights reserved.
Link to Us! Graphics used as link buttons.
For problems or questions regarding this web contact