What is CJD Voice
We are a grass roots organization of individuals formed in May 1997 to
support families during and after a CJD crisis. We also discuss
various issues surrounding CJD and other related illnesses. As of
we have over 400 members.
Our main objectives have been
Thanks for contacting CJD
Voice from the founders, Dolly, Pat & Liz.
- Offering support for
families during and after CJD.
- Provide a forum for
discussion of topics relating to CJD.
- Lobby for increased
education regarding not only in the public community but medical communities
- Lobby for
increased funding for research into CJD.
- Lobbying to change the
state to state reporting practices of CJD to the CDC.
Submit a member profile
here to send your email request to join the mailing list
Past entries before April
2004 on the Memorial Calendar have been lost, please re-submit your
information of loved ones and friends whom were victims of CJD...
click here to submit your info
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